Linda Ng is a parent who has also adjusted to providing support in any way that is needed. Here is a peek into Linda’s experience. Her daughter, Courtney Ng was diagnosed at 25 years old with ARCA1 – Autosomal Recessive Cerebellar Ataxia Type 1.
As a mother, I’ve always put my daughter as a priority. Whether I was working, I always made sure I was home, organizing meals, taking her to various activities. Since her diagnosis I don’t see a significant change, I can re-organize my life – if she needs a ride. As a mother, I’m still a caregiver with or without a disability.
I have worked with children with physical and mental disabilities not related to Ataxia. My background is in nursing so I am used to this. I’m already in the field, it’s just close to home vs. me working outside and I forget about it, this is 24-7.
I have worked with children with physical and mental disabilities but they were not Ataxia per se except for my daughter. I would like to help my daughter and her foundation, Hope for Ataxia, and I’ve learned a lot through my daughter, her research, her foundation, and going to the National Ataxia Conference, and the webinars, I’ve learned a lot.
I would suggest people focus on the positive, focus on what the person can do but not what they can’t, be supportive and compassionate, be there for that person and give them a lot of encouragement.
Thank you Linda Ng for sharing how you offer support to your daughter Courtney.
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