Blog

Currently there are no new posts, feel free to check out our past profiles

Gary Johnson – Life is Good

Gary Johnson has SCA2, which he was diagnosed with at age 42. He always knows how to turn a bad day around!

Sandy Holleman – I Have Hope

Sandy Holleman has a daughter, Mary Beth, who has been diagnosed with SCA 15. Sandy shares her experience of what it is like to have ataxia run in the family.

You can find all sorts of movie lists out there: The Top 10 Westerns, The Best Movies About Sports, Movies You Have To See About ____ (fill in the blank), and so on.Here is yet another list–13 key movies about various disabilities and how they affect and change lives. Either I have seen these films […]

Leslie McIntyre – Thrive With My New Reality

Leslie McIntyre has Ataxia and she went through a rough time when her physical symptoms started progressing. Right now, things are looking brighter.

Community Profile: Linda Lafontaine

In November of 2021, Hope for Ataxia posted a blog about Linda Lafontaine as one of the “Faces of Ataxia” . The following post is a second blog about Linda, but with a different perspective. The present blog is about a medical study that she is participating in. Linda’s reasoning for her participation is simple: […]

Bradley McDowell – Music is My Success

Bradley McDowell used to live a pretty normal life. In his thirties, he was diagnosed with Friedreich’s Ataxia.

Life and Parkinson’s Disease with Nathan Lee Ward

Two core values we have at Hope For Ataxia are collaboration and inclusion. With this in mind, we welcome Nathan Lee Ward! Today we’ll learn more about Nathan and “Living with PD” – (Parkinson’s Disease) in our latest Speaker Session. PD is a movement disorder, outwardly similar to hereditary or acquired Ataxia. People with PD […]

Keila Aartila – Living My Best Life Anyway

Keila Aartila has spinocerebellar ataxia. She works with horses and is also an author and entrepreneur.

The Disability Rights Landscape

In any discussion of disability rights, we must first know what is already in place. Legislation varies by country and region, of course, but we must consider each other’s rules, laws, bills, etc. so that we can advocate and share with one another. Our discussion today centres on existing legislation in Canada and the United […]