We’re looking for a few good leaders! We’ve accomplished a lot in the last few months, but we still have a lot to do. If you’re driven, passionate, and have some corporate/board experience, consider joining our board. Read a bit more about our available board positions below. Who We’re Looking For We’re searching for 6 […]
Like his father, Keenan Boyd has SCA3. He shares his experience on dealing with the same diagnonsis. In memory of his father, Keenan started The Sir Ron Foundation, in memory of his father, through which he aims to support anyone who has Ataxia or knows someone with this disease.
We’re mid-way through April 2021 and we’ve got some great promos coming up in the HFA store! #1 – 15% off everything From April 14th to 18th, you’ll be able to get free shipping on any items in the HFA store. The sale starts at 12:00 AM Eastern on the 14th and ends on the […]
In November 2020, Nate Emberson joined the Hope for Ataxia team as an IT Manager, leveraging his technical problem-solving skills to create a technical foundation for future growth. The work that Nate Emberson does will allow the team to focus on forming meaningful connections with others while spending less time on infrastructure. As a subject matter expert, Nate is a great resource and helps HFA reduce friction for the community by improving the experience and speed […]
I wasn’t going to let Zita Desa get away with not writing a post. She is my mom after all. Read more below! Hello, my name is Zita Desa and I have the privilege of being Mark’s mum.Looking back Mark has always been a quiet child with a great sense of humour. Mark has already […]
Jacqueline Bennett has become a fixture at our Global Ataxia Support. As of yet, she doesn’t have a clear diagnosis. Read more of her story! Hi, my name is Jackie Bennett, 62. I have two children, Emma 26, James 24. I was born in England, emigrated to Canada at 20. I started having very mild […]