Blog
Join Our Board of Directors
We’re looking for a few good leaders! We’ve accomplished a lot in the last few months, but we still have a lot to do. If you’re driven, passionate, and have some corporate/board experience, consider joining our board. Read a bit more about our available board positions below. Who We’re Looking For We’re searching for 6 […]
Keenan Boyd – You are Not Alone
Like his father, Keenan Boyd has SCA3. He shares his experience on dealing with the same diagnonsis. In memory of his father, Keenan started The Sir Ron Foundation, in memory of his father, through which he aims to support anyone who has Ataxia or knows someone with this disease.
April 2021 Promos in the HFA Store
We’re mid-way through April 2021 and we’ve got some great promos coming up in the HFA store! #1 – 15% off everything From April 14th to 18th, you’ll be able to get free shipping on any items in the HFA store. The sale starts at 12:00 AM Eastern on the 14th and ends on the […]
Maxine Derksen – An Outsider’s Perspective
This week Maxine Derksen will tell how her studies in human-technology interaction led her on a path to learn about ataxia.
Karl Sterling – Speaker Sessions
We’re grateful to announce that we’ve booked Karl Sterling to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
Hannah Pagalunan – Adapt, Embrace and Have Faith
Hannah Pagalunan shares her view on coping with an ARCA1 diagnosis.
Nate Emberson – Volunteer Profile
In November 2020, Nate Emberson joined the Hope for Ataxia team as an IT Manager, leveraging his technical problem-solving skills to create a technical foundation for future growth. The work that Nate Emberson does will allow the team to focus on forming meaningful connections with others while spending less time on infrastructure. As a subject matter expert, Nate is a great resource and helps HFA reduce friction for the community by improving the experience and speed […]
Martyna Nowak – The Story of My Son
This is the story of the four-year-old Leon who has SCAX1, as told by his mom.
Georg Herdt – Speaker Sessions
We’re grateful to announce that we’ve booked Georg Herdt to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
Zita Desa – The Diagnosis Was a Total Shock
I wasn’t going to let Zita Desa get away with not writing a post. She is my mom after all. Read more below! Hello, my name is Zita Desa and I have the privilege of being Mark’s mum.Looking back Mark has always been a quiet child with a great sense of humour. Mark has already […]
Jacqueline Bennett – Happiness is Not a Destination
Jacqueline Bennett has become a fixture at our Global Ataxia Support. As of yet, she doesn’t have a clear diagnosis. Read more of her story! Hi, my name is Jackie Bennett, 62. I have two children, Emma 26, James 24. I was born in England, emigrated to Canada at 20. I started having very mild […]
Volunteer Job Postings
We’re looking for a few good volunteers!We’ve accomplished a lot in the last few months, but we still have a lot to do.If you’re driven, passionate and want to learn and grow, consider joining our team via one of the positions below.