Global Ataxia Support Group
Please read through the Frequently Asked Questions before registering.
Frequently Asked Questions
Join us every Friday!
Once you register for our weekly meetings at 3pm, for example, you won’t have to register again next week. However, the registration for 3pm and 6pm is separate.
3PM EST (8PM in UK, 5AM Sat. in Sydney, AU)
6PM EST (11PM in UK, 8AM Sat. in Sydney, AU)
Occasionally we hear from individuals in the disability community that might have some information useful to Ataxians. Also, it’s a way for us to spread awareness who might not know about Ataxia.
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“I have really appreciated the whole for ataxia support group meetings because I have met people with Ataxia from all over the United States and other countries even. I’ve met a few people that have just been diagnosed and have a lot of questions, and I have met some people that have been living in coping with Ataxia for a long time. It has been nice to feel like I’m not the only one on this journey. In the support group, I can even offer some ideas not really advice but ideas to other people going through the same thing. And I couldn’t think of one instance recently when we are able to laugh about some situations that we have in common.”
“Attending the virtual support group meetings has been a fantastic blessing. Before my diagnosis I was very social, an educator in the community … Interacting with lots of different people was normal. The Hope for Ataxia Support Group meetings have opened that door once again for me. I’m making all kinds of connections, from all over the world and seeing that living with Ataxia is challenging but possible. No harsh judgment, I love this group!”
“Really enjoy meeting others from around the world and sharing the complexity of life with Ataxia! Attending the Virtual global ataxia meetings helps you to realize you aren’t alone.”
“Great group! I love talking to others with Ataxia….support, advice, and understanding. Getting to know others’ faces and keeping up to date with them.”