Kara Torres-Kilgannon is the mom of the 9-year-old Sebastian who suffers from ataxia and leg spasticities of an unknown cause. Despite his daily struggles, he is a motivated young boy with many interests that dreams of being a doctor.
Faces Of Ataxia
Check out the Faces Of Ataxia! Every week we update this section with a story from someone with Ataxia, a caregiver, friend, or relative.
Like his father, Keenan Boyd has SCA3. He shares his experience on dealing with the same diagnonsis. In memory of his father, Keenan started The Sir Ron Foundation, in memory of his father, through which he aims to support anyone who has Ataxia or knows someone with this disease.
I wasn’t going to let Zita Desa get away with not writing a post. She is my mom after all. Read more below! Hello, my name is Zita Desa and I have the privilege of being Mark’s mum.Looking back Mark has always been a quiet child with a great sense of humour. Mark has already […]
Jacqueline Bennett has become a fixture at our Global Ataxia Support. As of yet, she doesn’t have a clear diagnosis. Read more of her story! Hi, my name is Jackie Bennett, 62. I have two children, Emma 26, James 24. I was born in England, emigrated to Canada at 20. I started having very mild […]