Gary Johnson – Life is Good
Gary Johnson has SCA2, which he was diagnosed with at age 42. He always knows how to turn a bad day around!
Faces Of Ataxia
Check out the Faces Of Ataxia! Every week we update this section with a story from someone with Ataxia, a caregiver, friend, or relative.
Sandy Holleman – I Have Hope
Sandy Holleman has a daughter, Mary Beth, who has been diagnosed with SCA 15. Sandy shares her experience of what it is like to have ataxia run in the family.
Leslie McIntyre – Thrive With My New Reality
Leslie McIntyre has Ataxia and she went through a rough time when her physical symptoms started progressing. Right now, things are looking brighter.
Bradley McDowell – Music is My Success
Bradley McDowell used to live a pretty normal life. In his thirties, he was diagnosed with Friedreich’s Ataxia.
Keila Aartila – Living My Best Life Anyway
Keila Aartila has spinocerebellar ataxia. She works with horses and is also an author and entrepreneur.
Louise Estabrook – Ataxia and Me
At age 56, Louise Estabrook found out she has SCA3. She drastically changed her lifestyle around, turning from a “couch potato” into a true “adrenaline junky”!
Jan Pantoja – Live the Best You Can
This week, we’re hearing from Jan Pantoja who has Ataxia with Vitamin E Deficiency. Read more below!
Kassidy Brewer – A Brain Aneurysm Out of the Blue
This week, Kassidy Brewer shares the story of her life after a sudden stroke during brain surgery. Read more below! Hi. I’m Kassidy Brewer. At age 13, I suddenly had a ruptured brain aneurysm out of the blue. I was in a coma for 4 months total. During one of my brain surgeries, I had […]
Billie J. Mattingly – My Ataxia Journey
In this week’s Faces of Ataxia blog post, Billie J. Mattingly shares her Ataxia journey and her positive message. My journey has been a long one. I have been searching for answers since I was in my teens. I am now forty-three and found my diagnosis in 2019 of Ataxia (SCA). When I was […]
Alan Thomas – Ataxia? What’s That?
Alan Thomas from Wales is a fixture in the Ataxia community. Read more about his journey below. ‘Ataxia’ means ‘lack of order’. People with ataxia have problems with movement, balance, and speech. It is a “Degenerative” (in my case, it is a very slow degeneration) there is currently no cure for this “Life-Limiting”, Neurological, condition. […]