Check out the inspiring story of Susan Harding. Snowshoeing, walking, biking/triking. She is a very active lady! My name is Susan Harding. I have been living with a genetically acquired ataxia since birth but was only clinically diagnosed in 1992. My mother was diagnosed in 1976. Her brother had been previously diagnosed in 1974. Another […]
Faces Of Ataxia
Check out the Faces Of Ataxia! Every week we update this section with a story from someone with Ataxia, a caregiver, friend, or relative.
This week we hear from Sandra Czernicki who has gone through many struggles on her journey. Read more below.
Read on to learn more about Ellie Cammack. Ellie has Acquired Ataxia and is the administrator of the Ataxia & Fitness Facebook group. I was diagnosed with Cerebellar Ataxia at 24 – I had a massive stroke during an Ironman triathlon training swim which left me with Ataxia. The stroke was primarily in my brainstem […]
Mike De Rosa is a well-known warrior in the Ataxia community. He is such an inspiration with all the tough workouts he does. I haven’t seen any video of him doing burpees though (inside joke). Enjoy!
Say hi to Scott Schloesser. He’s a regular attendee at our weekly support group. Read more about his road to a diagnosis below. My name is Scott Schloesser, and I have been a member of the Hope for Ataxia community since I learned of it at the beginning of the summer. I am 41 years […]
This week we’ll hear from Melissa Rehm. She was previously diagnosed with Parkinson’s Disease, but that was changed to Ataxia. Melissa Rehm here. At age 41, I began a medical journey full of doctor visits, exams, and tests. After two years of searching, a diagnosis of Young Onset Parkinson’s Disease (YOPD) was found. Receiving a […]