Martyna Nowak – The Story of My Son
This is the story of the four-year-old Leon who has SCAX1, as told by his mom.
Check out the Faces Of Ataxia! Every week we update this section with a story from someone with Ataxia, a caregiver, friend, or relative.
This is the story of the four-year-old Leon who has SCAX1, as told by his mom.
I wasn’t going to let Zita Desa get away with not writing a post. She is my mom after all. Read more below! Hello, my name is Zita Desa and I have the privilege of being Mark’s mum.Looking back Mark has always been a quiet child with a great sense of humour. Mark has already […]
Jacqueline Bennett has become a fixture at our Global Ataxia Support. As of yet, she doesn’t have a clear diagnosis. Read more of her story! Hi, my name is Jackie Bennett, 62. I have two children, Emma 26, James 24. I was born in England, emigrated to Canada at 20. I started having very mild […]
Amit Agarwala joins us from India. He has Restless Legs Syndrome and SCA12. I had a regular uneventful childhood. RLS (Restless Legs Syndrome) was the only event that rocked me. I needed a pillow between my legs to sleep; no doctor could understand the reason behind it. One time when I was in the USA […]
Meet Melissa Schmittler. She’s got SCA3 and is a regular at our Global Ataxia Support Group meetings.
Check out the inspiring story of Susan Harding. Snowshoeing, walking, biking/triking. She is a very active lady! My name is Susan Harding. I have been living with a genetically acquired ataxia since birth but was only clinically diagnosed in 1992. My mother was diagnosed in 1976. Her brother had been previously diagnosed in 1974. Another […]
This week we hear from Sandra Czernicki who has gone through many struggles on her journey. Read more below. Life, obstacles, and opportunities I’m Sandra, 30 years old, was born in Poland, grew up in West Germany, and I’ve lived in Berlin since 2010; together with my fiancé, a cat, and a dog. The first […]
Read on to learn more about Ellie Cammack. Ellie has Acquired Ataxia and is the administrator of the Ataxia & Fitness Facebook group.
Mike De Rosa is a well-known warrior in the Ataxia community. He is such an inspiration with all the tough workouts he does. I haven’t seen any video of him doing burpees though (inside joke). Enjoy! Mike De Rosa here. I first started having multiple and progressive symptoms in Sep/Oct 2011. After almost two months […]
Linda Wagner joins us to tell us about the Ataxia in her family. Read more about her story. I am Linda Swier Wagner. My connection with Ataxia is that my first husband, Larry Swier, my daughter, Karlena Swier Cahalan, and my grandson, Kaleb Cahalan, have all been afflicted with SCA1 Ataxia. Larry was one of […]