Speakers
We’ve had some pretty awesome speakers at our Global Ataxia Support Group. Check them out here!
Lisa Dix – Dwell on the Positive
Lisa Dix has cerebellar ataxia, which in her case is caused by an immune reaction against the cerebellum. She loves to read, sew and has even learned to dance during therapy. By joining support groups, Lisa has met many wonderful people and learned a lot about ataxia. Hello, my name is Lisa Dix. I had […]
Susan Stiles – Let Our Voices Be Heard
Susan Stiles was diagnosed with SCA6 at the age of 64. She had always been unexplainably clumsy, but also very athletic. Susan has always been quite a workaholic and she has even written her own book. All my life I have been clumsy but didn’t know why. I kept falling down without a moment’s notice, […]
Tessa Lynn – Live Life Differently
Tessa Lynn managed to get her thoughts together to share her experience with having ataxia through the HFA blog. Through everything, she has always felt very supported by her husband and she enjoys every moment with her sons.
Shannon Dumphy Lazo – You Are Not Alone
After a genetic test in Feb 2021, Shannon Dunphy Lazo was diagnosed with ARCA3, also called SCAR10. She believes that “it is what it is” and recommends joining a support group. Shannon founded and leads the St Louis Ataxia Support Group.