Speakers
We’ve had some pretty awesome speakers at our Global Ataxia Support Group. Check them out here!
Billie J. Mattingly – My Ataxia Journey
In this week’s Faces of Ataxia blog post, Billie J. Mattingly shares her Ataxia journey and her positive message. My journey has been a long one. I have been searching for answers since I was in my teens. I am now forty-three and found my diagnosis in 2019 of Ataxia (SCA). When I was in […]
Alan Thomas – Ataxia? What’s That?
Alan Thomas from Wales is a fixture in the Ataxia community. Read more about his journey below. ‘Ataxia’ means ‘lack of order’. People with ataxia have problems with movement, balance, and speech. It is a “Degenerative” (in my case, it is a very slow degeneration) there is currently no cure for this “Life-Limiting”, Neurological, condition. […]
Parna Mukherjee – Let’s Win This Battle
Parna Mukherjee tells her story of living in a family with SCA2 and how she copes with the disease through movement.
Terry O’Hanlon – The Devil You Know
Terry O’Hanlon had a hard time finally getting his diagnosis, even though his brother had already been diagnosed with Friedreich’s Ataxia (FA) before him.