Deliver support before decline
Equipment and therapy arrive within 30 days of assessment, not after the next fall.
Our mission
Protect independence for as long as it can be protected
We exist to close the gap between what people with Spinocerebellar Ataxia need and what health systems currently pay for.
The gap we work in
Diagnosis of SCA is often the end of clinical involvement rather than the start. Families are sent home with a genetic result and very little else. Mobility aids are means-tested or delayed for months. Specialist neuro-rehabilitation is rarely reimbursed. Research funding follows commoner diseases.
Our work is deliberately unglamorous: we buy the equipment, we pay for the therapy blocks, we seed the research that larger funders will not touch yet, and we pay for somebody to sit with a carer at 2am.
Priorities to 2030
Four commitments we measure ourselves against
Fund science that shares
Every grant we award requires open-access publication and data sharing with the consortium.
Count the carers
Respite, counselling and peer circles are funded as core programme work, not an add-on.
Prove every dollar
Published unit costs, audited accounts, and outcome reporting on every campaign.