Built by the families who needed it first

Spinocerebellar Ataxia is inherited, progressive, and — for now — incurable. It takes coordination first, then speech, then independence. There are more than forty genetic subtypes and no single treatment path.

What exists, and works, is practical support delivered early: a rollator fitted properly, twelve weeks of balance therapy, a bathroom made safe, a carer given a night off. These things do not make headlines. They keep people at home, working, and with their families.

Our commitments

• Nothing is funded without clinical review and a published cost.
• People living with ataxia sit on every decision-making panel we run.
• Accounts are audited annually and published in full.
• Research we fund must be published open-access.