Mark Desa is a co-founder of Hope For Ataxia and has a rare form of Ataxia known as ARCA1. Check out his story below. Hi. My name is Mark. Ataxia wasn’t even on my mind until around the time of my diagnosis. Growing up, I was always a little clumsy. I never learned how to ride a bike and […]
Maggie d’Entremont shares her story of having a rare disorder – even among Ataxians – called ARCA1. I’ve been diagnosed with Ataxia for @ 2-1/2 years. I’m currently fighting against the effects of Ataxia. As far back as I can remember, I had always been battling with clumsiness. Although growing up in Toronto, Canada, I […]
It can be a challenge to be a supportive friend of someone with Ataxia. Those who not have the condition may find it difficult to understand exactly what is impacted and what is not. Allison Tse tries to put herself in her friend’s shoes and imagines what she must see from her perspective. As well […]
Courtney Ng will share how she stays active and how she is trying to increase awareness of Ataxia globally. Although I was born with this condition, I experienced symptoms starting when I was 19 and was officially diagnosed at 25 years old with ARCA 1 – Autosomal Recessive Cerebellar Ataxia Type 1. I used to […]
Linda Ng is a parent who has also adjusted to providing support in any way that is needed. Here is a peek into Linda’s experience. Her daughter, Courtney Ng was diagnosed at 25 years old with ARCA1 – Autosomal Recessive Cerebellar Ataxia Type 1.