Faces of Ataxia

Hannah Pagalunan – Adapt, Embrace and Have Faith

Hannah Pagalunan shares her view on coping with an ARCA1 diagnosis.

Martyna Nowak – The Story of My Son

This is the story of the four-year-old Leon who has SCAX1, as told by his mom.

Zita Desa – The Diagnosis Was a Total Shock

I wasn’t going to let Zita Desa get away with not writing a post. She is my mom after all. Read more below! Hello, my name is Zita Desa and I have the privilege of being Mark’s mum.Looking back Mark has always been a quiet child with a great sense of humour. Mark has already […]

Jacqueline Bennett – Happiness is Not a Destination

Jacqueline Bennett has become a fixture at our Global Ataxia Support. As of yet, she doesn’t have a clear diagnosis. Read more of her story! Hi, my name is Jackie Bennett, 62. I have two children, Emma 26, James 24. I was born in England, emigrated to Canada at 20. I started having very mild […]

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