Faces Of Ataxia

Heather Krause – A Veteran Artist
This week we feature Heather Krause. Heather is a veteran of the US Army and also an artist. Check out her story! I was diagnosed with SCA2 ( Spinocerebellar Ataxia type 2) in 2009 at 25 while serving in the US Army as a camera operator/documentarian in South Korea where I married my husband in […]

Amy De Leon – Be Tenacious
This week we hear from the inspiring Amy De Leon. Take a look at her story of perseverance and tenacious-ness.

Mark Desa – From A Curse To A Blessing
Mark Desa is a co-founder of Hope For Ataxia and has a rare form of Ataxia known as ARCA1. Check out his story below. Hi. My name is Mark. Ataxia wasn’t even on my mind until around the time of my diagnosis. Growing up, I was always a little clumsy. I never learned how to ride a bike and […]

Jenny Spiller – A Rare Ataxian
Jenny Spiller shares her story with us this week. Jenny has a very rare form of Ataxia. We’ll let her tell you more about it.