Isabel Alfaiate – This is a Question of Attitude
Isabel Alfaiate comes to us from Portugal. She has a form of Ataxia known as SCA3, but we’ll let her tell you more about it.
Faces Of Ataxia
Dona Wright – Dance Again
Hi Dona Wright. All this time in our support group, we had no idea about your painting ability. How awesome! Read on.
Scott Schloesser – My Road to a Label
Say hi to Scott Schloesser. He’s a regular attendee at our weekly support group. Read more about his road to a diagnosis below. My name is Scott Schloesser, and I have been a member of the Hope for Ataxia community since I learned of it at the beginning of the summer. I am 41 years […]
Melissa Rehm – From Parkinson’s to Ataxia
This week we’ll hear from Melissa Rehm. She was previously diagnosed with Parkinson’s Disease, but that was changed to Ataxia. Melissa Rehm here. At age 41, I began a medical journey full of doctor visits, exams, and tests. After two years of searching, a diagnosis of Young Onset Parkinson’s Disease (YOPD) was found. Receiving a […]
Emma Checketts – You Are Not Alone
Check out Emma Checketts’ story! She has ARCA1 (also known as SCAR8). It’s a rare form of Ataxia. Read more below.
Brystal Kondratuk – Hello From South Dakota
This week, we get to hear from Brystal Kondratuk. Brystal is a recent, but welcome addition to our support group. Check out her story! Hello from South Dakota! My name is Brystal Kondratuk. I am 28 years old and have cerebellar ataxia, type unknown. I would like to share with you a little bit about […]
Troy Stewart – My Experience With Ataxia
This week’s Ataxia story comes to us from Troy Stewart. Troy is a chef who’s struggled to reclaim some of what he’s lost over the years. Don’t get me wrong, having ataxia now over three years diagnosed has been nothing but an upward struggle. But instead of letting it take me and allow it to […]
Heather Krause – A Veteran Artist
This week we feature Heather Krause. Heather is a veteran of the US Army and also an artist. Check out her story! I was diagnosed with SCA2 ( Spinocerebellar Ataxia type 2) in 2009 at 25 while serving in the US Army as a camera operator/documentarian in South Korea where I married my husband in […]
Amy De Leon – Be Tenacious
This week we hear from the inspiring Amy De Leon. Take a look at her story of perseverance and tenacious-ness.
Mark Desa – From A Curse To A Blessing
Mark Desa is a co-founder of Hope For Ataxia and has a rare form of Ataxia known as ARCA1. Check out his story below. Hi. My name is Mark. Ataxia wasn’t even on my mind until around the time of my diagnosis. Growing up, I was always a little clumsy. I never learned how to ride a bike and […]