Faces Of Ataxia
Darcy Downing – My Life With Ataxia
This week, Darcy Downing shares her story of her EA2 diagnosis and how she’s coping with it. My name is Darcy Marie. I have a diagnosis of Episodic Ataxia type2. It took me 9 years to receive a diagnosis and yet my diagnosis hasn’t been proven. I still have all the symptoms of what seems […]
Maggie d’Entremont – A Rare Ataxian
Maggie d’Entremont shares her story of having a rare disorder – even among Ataxians – called ARCA1. I’ve been diagnosed with Ataxia for @ 2-1/2 years. I’m currently fighting against the effects of Ataxia. As far back as I can remember, I had always been battling with clumsiness. Although growing up in Toronto, Canada, I […]
Darrin Rein – Don’t Sweat The Petty, Pet The Sweaty.
Meet Darrin Rein. He was diagnosed in 2018 and as yet doesn’t know what type of SCA he has.
Frank Orlowski – Okay, This Is A Little Weird
It’s amazing to see the adventures Frank Orlowski gets up to. Despite having an unknown Ataxia, he continues to get out and about in nature.
Patti Okai – Acquired Ataxia From A Tumour
Today we get to hear from Patti Okai who has a harrowing story of how she acquired Ataxia via a brain tumour. Hi. I’m Patti Okai. On Valentine’s Day of 2018, I was diagnosed with medulloblastoma. I had gone to my primary doctor about my symptoms. I was getting sick every morning, I was pretty […]
Damar Smith – Focused On What I Can Do
Damar Smith has learned a lot from caring for her sister and living with a disability herself. She chooses to focus on what she can do over what she cannot.
Will Smith – My Wife Damar
Will Smith shares a love story that happens to include two people who embraced their differences as willingly as their similarities. Read more about how together they are making adjustments to continue building their lives together.
Margaret Squire: From A Land Down Under
We introduce Margaret Squire, coming to you from Australia. She lives far from here, but her story sounds familiar to many of us. She has always and still receives joy from working with her church and helping native animals.
Norma Lutkenhouse: Don’t Cry Because It’s Over
Norma Lutkenhouse did not hit the pause button in her life after she was diagnosed with Ataxia. She is no longer working but she is utilizing her time keeping active and spending time with her family. She looks at her changing abilities as a way to be introduced to new interests. My mom has Ataxia, […]