Kara Torres-Kilgannon is the mom of the 9-year-old Sebastian who suffers from ataxia and leg spasticities of an unknown cause. Despite his daily struggles, he is a motivated young boy with many interests that dreams of being a doctor.
Doug Alberg is a man that gets things done and likes to work with his hands. After getting diagnosed with unknown Ataxia only two years ago, his daily life changed a lot, but he also learned to appreciate the little things in life.
Mike De Rosa is a well-known warrior in the Ataxia community. He is such an inspiration with all the tough workouts he does. I haven’t seen any video of him doing burpees though (inside joke). Enjoy! Mike De Rosa here. I first started having multiple and progressive symptoms in Sep/Oct 2011. After almost two months […]
Say hi to Scott Schloesser. He’s a regular attendee at our weekly support group. Read more about his road to a diagnosis below. My name is Scott Schloesser, and I have been a member of the Hope for Ataxia community since I learned of it at the beginning of the summer. I am 41 years […]
This week, we get to hear from Brystal Kondratuk. Brystal is a recent, but welcome addition to our support group. Check out her story! Hello from South Dakota! My name is Brystal Kondratuk. I am 28 years old and have cerebellar ataxia, type unknown. I would like to share with you a little bit about […]
This week’s Ataxia story comes to us from Troy Stewart. Troy is a chef who’s struggled to reclaim some of what he’s lost over the years. Don’t get me wrong, having ataxia now over three years diagnosed has been nothing but an upward struggle. But instead of letting it take me and allow it to […]
Elaine Evans kindly shares her story this week. Elaine joins us from lovely Australia and is a regular attendee at our weekly support group. My Ataxia story begins in Malaysia. In 2004 I organized, what my husband and I called our “magical mystery tour.” We were very keen travelers and I wanted to do something […]
It’s amazing to see the adventures Frank Orlowski gets up to. Despite having an unknown Ataxia, he continues to get out and about in nature. “Okay, this is a little weird,” I thought at the time. Must have been about seven years ago, as I was attempting to do a quick jog across the street. […]
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For today’s Ataxia Profile, I am featuring a lady from Salem Oregon. She and her husband Ray attend the two same Support Groups that my wife and I attend…and it is my pleasure to introduce Celia Baculi to you. I am going to let Celia tell you her story…in her own words. I was 52 […]
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This week’s Ataxia Profile is number 16…and I have been enjoying bringing them to you. This time, I am pleased to bring you Donna Gregg’s story. I will let her tell it in her words: I have a disability. There. I said that aloud for the first time yesterday, since being diagnosed with ataxia three […]