Alexandra Lopez-Taylor: Live Your Best Life
Meet Alexandra Lopez-Taylor who has learned that she holds the power to reach her personal goals. Read more about how she uses various tools to make her life the best it can be.
Meet Alexandra Lopez-Taylor who has learned that she holds the power to reach her personal goals. Read more about how she uses various tools to make her life the best it can be.
Nicole Magnum is inspired by what her friend has done to get involved in the Ataxia community. Together they are doing things they enjoy that will eventually become much more challenging with a movement disorder. One of my closest friends, Veronica Denis, was diagnosed with Ataxia when she was 46 in 2018. She has Spinocerebellar […]
This week we are getting to know Veronica Denis who has been involved in several different ataxia groups since her diagnosis. She has also found ways to continue to doing things that are both fulfilling for her and helpful to others. Hi, my name is Veronica Denis and I reside in Southern Maryland, 30 minutes […]
Here is the story of Chris Robinson. He tells us of how a friendship from childhood and a death in his family intersected. This would lead to clarity on what was happening to his friend’s father many years before. While I do not have ataxia, I advocate because my friend, Erin has Spinocerebellar Ataxia (SCA). […]
Here’s the story of Mary Sheetz. She’s got SCA8. Learn how she’s dealing with the challenges presented by her Ataxia.
For the Ataxia Profile this week we will be learning about the story of Chanda Huy. Chanda is working on trying to adjust and adapt to the diagnosis of Spinocerebellar Ataxia that she received a year ago. The form that she has is hereditary, passed down by her father. All of the simple things that […]
Jodie Kawa knew from a young age her chances of having a dominantly inherited ataxia, SCA2. Since her diagnosis she has discovered new ways to contribute to helping others as she once was a teacher. She now is very active with the NAF and helps runs the Western North Carolina Ataxia Support Group. I […]
For today’s Ataxia Profile, I am pleased to introduce Dana Creighton to you. In Two-Thousand-and-Six, at the age of Thirty-Three, Dana went to the Athena Diagnostics Lab to undergo a blood draw and genetic workup. She went because Spinocerebellar Ataxia ran through the generations of her family. Her mother had struggled with it…and had passed […]
I have heard from many of you that these Profiles are very helpful. I am very glad to hear this…and send a thank-you to all that have allowed me to present their stories to you. In the same spirit, this week I would like to introduce you to Amy Hamrick. Amy was thirty years old […]
Hey, everyone! Time for Ataxia Profile number twenty…wow! Time is going so fast…it’s hard for me to believe we are here already. I have very much enjoyed writing every profile and hope to bring you more. Some of you reading this will need to step up and send me your information…I only have eight more […]