Spinocerebellar Ataxia
Amanda Kate Hall – Celebrating the Small Wins
Amanda Kate Hall has SCA6 and exercising has always been a big part of her life. She is still very active and enjoys dancing with her beloved animals. Amanda highlights the importance of celebrating the small wins.
Keenan Boyd – You are Not Alone
Like his father, Keenan Boyd has SCA3. He shares his experience on dealing with the same diagnonsis. In memory of his father, Keenan started The Sir Ron Foundation, in memory of his father, through which he aims to support anyone who has Ataxia or knows someone with this disease.
Martyna Nowak – The Story of My Son
This is the story of the four-year-old Leon who has SCAX1, as told by his mom.
Darrin Rein – Don’t Sweat The Petty, Pet The Sweaty.
Meet Darrin Rein. He was diagnosed in 2018 and as yet doesn’t know what type of SCA he has. Hello Everyone! I am Darrin Rein. I am Darrin Rein, I am 47 years of age. Currently, I own a small one-man show IT consulting company called RhinoTec Computer Services. I live in a small city […]
Damar Smith – Focused On What I Can Do
Damar Smith has learned a lot from caring for her sister and living with a disability herself. She chooses to focus on what she can do over what she cannot. Damar Smith has learned a lot from caring for her sister and living with a disability herself. She chooses to focus on what she can […]
Will Smith – My Wife Damar
Will Smith shares a love story that happens to include two people who embraced their differences as willingly as their similarities. Read more about how together they are making adjustments to continue building their lives together. From the day Damar and I met on a dating website, we were a match made in heaven. Damar […]
Margaret Squire: From A Land Down Under
We introduce Margaret Squire, coming to you from Australia. She lives far from here, but her story sounds familiar to many of us. She has always and still receives joy from working with her church and helping native animals.
Norma Lutkenhouse: Don’t Cry Because It’s Over
Norma Lutkenhouse did not hit the pause button in her life after she was diagnosed with Ataxia. She is no longer working but she is utilizing her time keeping active and spending time with her family. She looks at her changing abilities as a way to be introduced to new interests. My mom has Ataxia, […]