Like his father, Keenan Boyd has SCA3. He shares his experience on dealing with the same diagnonsis. In memory of his father, Keenan started The Sir Ron Foundation, in memory of his father, through which he aims to support anyone who has Ataxia or knows someone with this disease.
Meet Darrin Rein. He was diagnosed in 2018 and as yet doesn’t know what type of SCA he has. Hello Everyone! I am Darrin Rein. I am Darrin Rein, I am 47 years of age. Currently, I own a small one-man show IT consulting company called RhinoTec Computer Services. I live in a small city […]
Damar Smith has learned a lot from caring for her sister and living with a disability herself. She chooses to focus on what she can do over what she cannot. Damar Smith has learned a lot from caring for her sister and living with a disability herself. She chooses to focus on what she can […]
Will Smith shares a love story that happens to include two people who embraced their differences as willingly as their similarities. Read more about how together they are making adjustments to continue building their lives together. From the day Damar and I met on a dating website, we were a match made in heaven. Damar […]
Norma Lutkenhouse did not hit the pause button in her life after she was diagnosed with Ataxia. She is no longer working but she is utilizing her time keeping active and spending time with her family. She looks at her changing abilities as a way to be introduced to new interests. My mom has Ataxia, […]
Nicole Magnum is inspired by what her friend has done to get involved in the Ataxia community. Together they are doing things they enjoy that will eventually become much more challenging with a movement disorder. One of my closest friends, Veronica Denis, was diagnosed with Ataxia when she was 46 in 2018. She has Spinocerebellar […]