Alan Thomas from Wales is a fixture in the Ataxia community. Read more about his journey below. ‘Ataxia’ means ‘lack of order’. People with ataxia have problems with movement, balance, and speech. It is a “Degenerative” (in my case, it is a very slow degeneration) there is currently no cure for this “Life-Limiting”, Neurological, condition. […]
Linda Lafontaine from Canada has Hereditary Spastic Paraplegia (HSP), which she has been dealing with for the past 17 years. Linda is very motivated to help others and volunteers as an ambassador at the Spastic Paraplegia Foundation to spread awareness for HSP.
In the first 44 years of his life, Cory Gallipeau was able to do what the other kids could as well. Cory has always been an active guy, engaging in many different sports. Recently, he started having physical difficulties and was diagnosed with spastic paraplegia 7 (SPG7). Cory tells us about his journey to find […]