Christie Alexander was diagnosed with Olivopontocerebellar Atrophy but learned that she actually has Spinocerebellar Ataxia Type 2 (SCA2). her story highlights the importance of getting a diagnosis by an ataxia specialist. She is now able to connect with others who know exactly what she is going through.
This week we feature Heather Krause. Heather is a veteran of the US Army and also an artist. Check out her story! I was diagnosed with SCA2 ( Spinocerebellar Ataxia type 2) in 2009 at 25 while serving in the US Army as a camera operator/documentarian in South Korea where I married my husband in […]
Damar Smith has learned a lot from caring for her sister and living with a disability herself. She chooses to focus on what she can do over what she cannot. Damar Smith has learned a lot from caring for her sister and living with a disability herself. She chooses to focus on what she can […]
Will Smith shares a love story that happens to include two people who embraced their differences as willingly as their similarities. Read more about how together they are making adjustments to continue building their lives together. From the day Damar and I met on a dating website, we were a match made in heaven. Damar […]
Nicole Magnum is inspired by what her friend has done to get involved in the Ataxia community. Together they are doing things they enjoy that will eventually become much more challenging with a movement disorder. One of my closest friends, Veronica Denis, was diagnosed with Ataxia when she was 46 in 2018. She has Spinocerebellar […]
This week we are getting to know Veronica Denis who has been involved in several different ataxia groups since her diagnosis. She has also found ways to continue to doing things that are both fulfilling for her and helpful to others. Hi, my name is Veronica Denis and I reside in Southern Maryland, 30 minutes […]
Jodie Kawa knew from a young age her chances of having a dominantly inherited ataxia, SCA2. Since her diagnosis she has discovered new ways to contribute to helping others as she once was a teacher. She now is very active with the NAF and helps runs the Western North Carolina Ataxia Support Group. I […]