Shirley Swier Jones – Speaker Profile
We’re grateful to announce that we’ve booked Shirley Swier Jones to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
SCA1
Dr. James Orengo – Speaker Profile
We’re grateful to announce that we’ve booked Dr. James Orengo to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
Sharon Volker – Hopeful for a Cure
Sharon Volker is 60 years old and has SCA1. It took some time before she received the right diagnosis. Every doctor and nurse she ever met never heard of SCA before. Sharon has always been very close with her daughters. In her daily life, loves to spend time at the beach and going out for […]
Linda Wagner – My Connection to Ataxia
Linda Wagner joins us to tell us about the Ataxia in her family. Read more about her story. I am Linda Swier Wagner. My connection with Ataxia is that my first husband, Larry Swier, my daughter, Karlena Swier Cahalan, and my grandson, Kaleb Cahalan, have all been afflicted with SCA1 Ataxia. Larry was one of […]
Ataxia Profile: Amy Hamrick
I have heard from many of you that these Profiles are very helpful. I am very glad to hear this…and send a thank-you to all that have allowed me to present their stories to you. In the same spirit, this week I would like to introduce you to Amy Hamrick. Amy was thirty years old […]
![Mary+Liebert[1]](https://hopeforataxia.org/wp-content/uploads/2020/03/MaryLiebert1-400x400.jpg "Mary+Liebert[1]")
Ataxia Profile: Mary Liebert
Hello, friends. Let’s keep up the momentum, by meeting another person in the profile blog…and today I am pleased to introduce you to Mary Liebert. Mary is fifty-seven and currently resides in Lafayette, Louisiana. She is a single mother with two daughters, three grandchildren…and a handful of cats…( I only have one cat, but feel […]
![Linda+Snider[1]](https://hopeforataxia.org/wp-content/uploads/2020/03/LindaSnider1-703x1024-400x400.jpg "Linda+Snider[1]")
Ataxia Profile: Linda Snider
When I first envisioned doing this blog, I was thinking that most of us have a limited voice. We have valuable life experiences, as we deal with a disability…and we have a lot of positive things that we can share. Life lessons that we have learned, or picked up along the way…that would be beneficial […]