SCA

Keila Aartila – Living My Best Life Anyway

Keila Aartila has spinocerebellar ataxia. She works with horses and is also an author and entrepreneur.

Margaret Squire: From A Land Down Under

We introduce Margaret Squire, coming to you from Australia. She lives far from here, but her story sounds familiar to many of us. She has always and still receives joy from working with her church and helping native animals.

Norma Lutkenhouse: Don’t Cry Because It’s Over

Norma Lutkenhouse did not hit the pause button in her life after she was diagnosed with Ataxia. She is no longer working but she is utilizing her time keeping active and spending time with her family. She looks at her changing abilities as a way to be introduced to new interests. My mom has Ataxia, […]

Becky Lacroix: It’s Your Body

Alexandra Lopez-Taylor: Live Your Best Life

Meet Alexandra Lopez-Taylor who has learned that she holds the power to reach her personal goals. Read more about how she uses various tools to make her life the best it can be.

Chris Robinson: My Friend With Ataxia

Here is the story of Chris Robinson. He tells us of how a friendship from childhood and a death in his family intersected. This would lead to clarity on what was happening to his friend’s father many years before. While I do not have ataxia, I advocate because my friend, Erin has Spinocerebellar Ataxia (SCA). […]

Mary Sheetz: My Life With SCA8

Here’s the story of Mary Sheetz. She’s got SCA8. Learn how she’s dealing with the challenges presented by her Ataxia.

Chanda Huy: Adjusting to a New Diagnosis

For the Ataxia Profile this week we will be learning about the story of Chanda Huy. Chanda is working on trying to adjust and adapt to the diagnosis of Spinocerebellar Ataxia that she received a year ago. The form that she has is hereditary, passed down by her father. All of the simple things that […]

Ataxia Profile: Catherine Meredith

Hello again everybody! I hope that you all are enjoying the Holiday season…and there is just enough time left in the two-thousand-nineteen year to get in one more Ataxia Profile. This will be number eighteen…and it is my pleasure to introduce Catherine Meredith to you for this writing. Catherine was forty-nine and in her fifth […]

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Ataxia Profile: Lisa Antonelli Cole

Let’s keep the momentum rolling…with Ataxia Profile number 17. Again, it is my distinct pleasure to introduce Lisa Antonelli Cole to you. Like many of you…I have met Lisa, (as a later photo will testify to:-)), but I look forward to writing this and getting to know her better. This is the purpose of these […]

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