Mark Desa is a co-founder of Hope For Ataxia and has a rare form of Ataxia known as ARCA1. Check out his story below. Hi. My name is Mark. Ataxia wasn’t even on my mind until around the time of my diagnosis. Growing up, I was always a little clumsy. I never learned how to ride a bike and […]
Jenny Spiller shares her story with us this week. Jenny has a very rare form of Ataxia. We’ll let her tell you more about it. Growing up I was pretty active, both as a child and also during my teenage years playing sports such as basketball, karate, and BMX Riding, among other things. I guess […]
Maggie d’Entremont shares her story of having a rare disorder – even among Ataxians – called ARCA1. I’ve been diagnosed with Ataxia for @ 2-1/2 years. I’m currently fighting against the effects of Ataxia. As far back as I can remember, I had always been battling with clumsiness. Although growing up in Toronto, Canada, I […]
![Sharon+White+Miller[1]](https://hopeforataxia.org/wp-content/uploads/2020/03/SharonWhiteMiller1-689x1024-400x400.jpg "Sharon+White+Miller[1]")
Hello, again friends…it is time to post our eighth Ataxia Profile. This time we will look into the life of Sharon White Miller. I am gaining strength by reading other people’s stories… and I hope you are, as well. One of the subjects in the personal accounts of life with Ataxia that I find very […]