Lisa Dix has cerebellar ataxia, which in her case is caused by an immune reaction against the cerebellum. She loves to read, sew and has even learned to dance during therapy. By joining support groups, Lisa has met many wonderful people and learned a lot about ataxia.
After dealing with an uncontrollable gait for some years, Debbie Levi was diagnosed with cerebellar ataxia. Ataxia has taught Debbie the importance of building a strong inner self. This inspired her to keep a gratitude journal, write a memoir and be grateful for life and what it has to offer.
Jacqueline Bennett has become a fixture at our Global Ataxia Support. As of yet, she doesn’t have a clear diagnosis. Read more of her story! Hi, my name is Jackie Bennett, 62. I have two children, Emma 26, James 24. I was born in England, emigrated to Canada at 20. I started having very mild […]
Mark Desa is a co-founder of Hope For Ataxia and has a rare form of Ataxia known as ARCA1. Check out his story below. Hi. My name is Mark. Ataxia wasn’t even on my mind until around the time of my diagnosis. Growing up, I was always a little clumsy. I never learned how to ride a bike and […]
Jenny Spiller shares her story with us this week. Jenny has a very rare form of Ataxia. We’ll let her tell you more about it. Growing up I was pretty active, both as a child and also during my teenage years playing sports such as basketball, karate, and BMX Riding, among other things. I guess […]
Maggie d’Entremont shares her story of having a rare disorder – even among Ataxians – called ARCA1. I’ve been diagnosed with Ataxia for @ 2-1/2 years. I’m currently fighting against the effects of Ataxia. As far back as I can remember, I had always been battling with clumsiness. Although growing up in Toronto, Canada, I […]