Blog
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Lisa Dix – Dwell on the Positive
Lisa Dix has cerebellar ataxia, which in her case is caused by an immune reaction against the cerebellum. She loves to read, sew and has even learned to dance during therapy. By joining support groups, Lisa has met many wonderful people and learned a lot about ataxia. Hello, my name is Lisa Dix. I had […]
Dani Izzie – Speaker Profile
We’re grateful to announce that we’ve booked Dr. Chantal von Schoenberg to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
Susan Stiles – Let Our Voices Be Heard
Susan Stiles was diagnosed with SCA6 at the age of 64. She had always been unexplainably clumsy, but also very athletic. Susan has always been quite a workaholic and she has even written her own book. All my life I have been clumsy but didn’t know why. I kept falling down without a moment’s notice, […]
Linda K. Olson – Speaker Profile
We’re grateful to announce that we’ve booked Linda K. Olson to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details! In her 20s, Linda Olson lost both her legs above the knee and her right arm in a train accident in Germany. She and her husband rebuilt their lives as […]
Tessa Lynn – Live Life Differently
Tessa Lynn managed to get her thoughts together to share her experience with having ataxia through the HFA blog. Through everything, she has always felt very supported by her husband and she enjoys every moment with her sons.
Shannon Dumphy Lazo – You Are Not Alone
After a genetic test in Feb 2021, Shannon Dunphy Lazo was diagnosed with ARCA3, also called SCAR10. She believes that “it is what it is” and recommends joining a support group. Shannon founded and leads the St Louis Ataxia Support Group.
Assistive Technology for Ataxia
For today’s HFA news post, I would like to share a summary of my thesis with you. It’s about a relatively new type of assistive device: a brain-computer interface (BCI).
Margaret Evans Albert – Stay Positive
After living a very active life filled with (volunteer) work, sports, and hobbies for the first 70 years of her life, Margaret Evans Albert had to change her habits. She was diagnosed with SCA3, which had a big impact on her daily life.
Shirley Swier Jones – Speaker Profile
We’re grateful to announce that we’ve booked Shirley Swier Jones to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
