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How to Attend the Global Ataxia Support Group

We have been holding our Global Ataxia Support Group (GASG) meetings for around 2 years now. The meetings are a great forum for Ataxians, caregivers, friends, and relatives to share their struggles and get some relief from others going through the same things. To attend a meeting, read below for instructions.

Kassidy Brewer – A Brain Aneurysm Out of the Blue

This week, Kassidy Brewer shares the story of her life after a sudden stroke during brain surgery. Read more below! Hi. I’m Kassidy Brewer. At age 13, I suddenly had a ruptured brain aneurysm out of the blue. I was in a coma for 4 months total. During one of my brain surgeries, I had […]

Stories That Empower Interview

We had the opportunity to record an interview a few months back on the Stories That Empower podcast with Sean Fajardi. Check it out here! On the podcast, Mark talked about his passion and mission to raise global awareness of ataxia. When he was in his 30s, Mark noticed that he slurred his words, had brain […]

Billie J. Mattingly – My Ataxia Journey

In this week’s Faces of Ataxia blog post, Billie J. Mattingly shares her Ataxia journey and her positive message. My journey has been a long one. I have been searching for answers since I was in my teens. I am now forty-three and found my diagnosis in 2019 of Ataxia (SCA). When I was […]

A Testimonial From Katja Gutzeit

I’ve wanted to thank you for accepting me into this group. Even if my illness is different (Parkinson’s Disease), I want to use your platform as an opportunity to appeal to you. Thanks a lot! Ataxia? Parkinsons? After such a diagnosis, the question marks are big and prompt many questions and fears.No matter how you […]

Alan Thomas – Ataxia? What’s That?

Alan Thomas from Wales is a fixture in the Ataxia community. Read more about his journey below. ‘Ataxia’ means ‘lack of order’. People with ataxia have problems with movement, balance, and speech. It is a “Degenerative” (in my case, it is a very slow degeneration) there is currently no cure for this “Life-Limiting”, Neurological, condition. […]

My Journey with Ataxia with Troy Stewart

Recently, we had the pleasure of hosting a speaker session with one of our support group members, Chef Troy Stewart.

Parna Mukherjee – Let’s Win This Battle

Parna Mukherjee tells her story of living in a family with SCA2 and how she copes with the disease through movement.

Business Plan Update

When we began this journey, we had no idea what was in store for Hope for Ataxia, all we knew was that we wanted to make a difference and provide a sense of belonging to those directly and indirectly affected by Ataxia. We were excited to create something meaningful and share the experience with others, […]