When we began this journey, we had no idea what was in store for Hope for Ataxia, all we knew was that we wanted to make a difference and provide a sense of belonging to those directly and indirectly affected by Ataxia. We were excited to create something meaningful and share the experience with others, […]
Terry O’Hanlon had a hard time finally getting his diagnosis, even though his brother had already been diagnosed with Friedreich’s Ataxia (FA) before him.
We’ve been busy at Hope For Ataxia.Let’s take a quick look at what we’ve been able to accomplish this year!
Meredith Shafer and her mom are both diagnosed with Ataxia. Her biggest wish is that all people would treat each other kindly and equally.
We’re grateful to announce that we’ve booked Myrta Pace to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
Michelle Pinard was an active runner ever since she was a kid and ran many marathons. In 2015, Michelle noticed some issues with her gait and body and she was diagnosed with cerebellar ataxia in 2019. Luckily, she got in touch with the Challenged Athletes Foundation, and she is now an avid cyclist!
We’re grateful to announce that we’ve booked Chef Troy Stewart to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details! Troy Stewart is a Chef who has been offering cooking classes for the disabled. Troy has overcome many challenges to make these classes a reality. He used to be a […]
Talia Harris was diagnosed with Spinocerebellar Ataxia at age 24. This inspired her to start her own company where she now works as a Disability Consultant. Most importantly, Talia takes the time to engage in activities she really enjoys.
Sharla Hume has a spinal compression injury and is very involved in communities related to coordination and movement disorders. Through this post, she shares some valuable experiences and explanations about ataxia with us. I am a child at heart. On a mission with many towards a Cure for a Neurological Disease Ataxia. There are many […]
Linda Lafontaine from Canada has Hereditary Spastic Paraplegia (HSP), which she has been dealing with for the past 17 years. Linda is very motivated to help others and volunteers as an ambassador at the Spastic Paraplegia Foundation to spread awareness for HSP.