We have been holding our Global Ataxia Support Group (GASG) meetings for around 2 years now. The meetings are a great forum for Ataxians, caregivers, friends, and relatives to share their struggles and get some relief from others going through the same things. To attend a meeting, read below for instructions.
This week, Kassidy Brewer shares the story of her life after a sudden stroke during brain surgery. Read more below! Hi. I’m Kassidy Brewer. At age 13, I suddenly had a ruptured brain aneurysm out of the blue. I was in a coma for 4 months total. During one of my brain surgeries, I had […]
We had the opportunity to record an interview a few months back on the Stories That Empower podcast with Sean Fajardi. Check it out here! On the podcast, Mark talked about his passion and mission to raise global awareness of ataxia. When he was in his 30s, Mark noticed that he slurred his words, had brain […]
In this week’s Faces of Ataxia blog post, Billie J. Mattingly shares her Ataxia journey and her positive message. My journey has been a long one. I have been searching for answers since I was in my teens. I am now forty-three and found my diagnosis in 2019 of Ataxia (SCA). When I was […]
I’ve wanted to thank you for accepting me into this group. Even if my illness is different (Parkinson’s Disease), I want to use your platform as an opportunity to appeal to you. Thanks a lot! Ataxia? Parkinsons? After such a diagnosis, the question marks are big and prompt many questions and fears.No matter how you […]
Alan Thomas from Wales is a fixture in the Ataxia community. Read more about his journey below. ‘Ataxia’ means ‘lack of order’. People with ataxia have problems with movement, balance, and speech. It is a “Degenerative” (in my case, it is a very slow degeneration) there is currently no cure for this “Life-Limiting”, Neurological, condition. […]