You can find all sorts of movie lists out there: The Top 10 Westerns, The Best Movies About Sports, Movies You Have To See About ____ (fill in the blank), and so on. Here is yet another list–13 key movies about various disabilities and how they affect and change lives. Either I have seen these […]
See what we’re up to! Check here for the latest news and developments on the work we’re doing at Hope For Ataxia.
In November of 2021, Hope for Ataxia posted a blog about Linda Lafontaine as one of the “Faces of Ataxia” . The following post is a second blog about Linda, but with a different perspective. The present blog is about a medical study that she is participating in. Linda’s reasoning for her participation is simple: […]
Two core values we have at Hope For Ataxia are collaboration and inclusion. With this in mind, we welcome Nathan Lee Ward! Today we’ll learn more about Nathan and “Living with PD” – (Parkinson’s Disease) in our latest Speaker Session. PD is a movement disorder, outwardly similar to hereditary or acquired Ataxia. People with PD […]
In any discussion of disability rights, we must first know what is already in place. Legislation varies by country and region, of course, but we must consider each other’s rules, laws, bills, etc. so that we can advocate and share with one another. Our discussion today centres on existing legislation in Canada and the United […]
We have been holding our Global Ataxia Support Group (GASG) meetings for around 2 years now. The meetings are a great forum for Ataxians, caregivers, friends, and relatives to share their struggles and get some relief from others going through the same things. To attend a meeting, read below for instructions.
We had the opportunity to record an interview a few months back on the Stories That Empower podcast with Sean Fajardi. Check it out here! On the podcast, Mark talked about his passion and mission to raise global awareness of ataxia. When he was in his 30s, Mark noticed that he slurred his words, had brain […]
I’ve wanted to thank you for accepting me into this group. Even if my illness is different (Parkinson’s Disease), I want to use your platform as an opportunity to appeal to you. Thanks a lot! Ataxia? Parkinsons? After such a diagnosis, the question marks are big and prompt many questions and fears.No matter how you […]
When we began this journey, we had no idea what was in store for Hope for Ataxia, all we knew was that we wanted to make a difference and provide a sense of belonging to those directly and indirectly affected by Ataxia. We were excited to create something meaningful and share the experience with others, […]