Faces Of Ataxia
Check out the Faces Of Ataxia! Every week we update this section with a story from someone with Ataxia, a caregiver, friend, or relative.
After dealing with an uncontrollable gait for some years, Debbie Levi was diagnosed with cerebellar ataxia. Ataxia has taught Debbie the importance of building a strong inner self. This inspired her to keep a gratitude journal, write a memoir and be grateful for life and what it has to offer.
Elizabeth Foss is an Occupational Therapist who has been focused on therapy and support for people with Parkinson’s and Multiple Sclerosis. More recently, Elizabeth has gotten in touch with the ataxia community and she has been working enthusiastically on interesting and fun exercise programs.
In the first 44 years of his life, Cory Gallipeau was able to do what the other kids could as well. Cory has always been an active guy, engaging in many different sports. Recently, he started having physical difficulties and was diagnosed with spastic paraplegia 7 (SPG7). Cory tells us about his journey to find […]
Sharon Volker is 60 years old and has SCA1. It took some time before she received the right diagnosis. Every doctor and nurse she ever met never heard of SCA before. Sharon has always been very close with her daughters. In her daily life, loves to spend time at the beach and going out for […]
Adrian McBreen was diagnosed with acquired ataxia at age 3. While he is originally from Ireland, he now lives and works in England. In his spare time, he joins many ataxia-related events and is brave enough to go skydiving. Adrian also loves to write and has already made a start on his first novel. I […]
Stephanie Hales was diagnosed with ataxia already 20 years ago. She used to work in hospitality but now spends her time doing volunteer work, knitting, and aquacising. She also regularly joins the HFA Global Support Group where she learned many practical tips and learned about others people’s experiences with ataxia. I hope my story is […]
Michelle Reid got diagnosed with SCA3 after a five-year search to find out what caused her symptoms. There are some things she is not able to do anymore like before, but she still works successfully as an IT Project Manager. Michelle and her husband make the most out of life by incorporating laughter into their […]
Cindy Furton De Mint is a mother of four. Three of her sons are diagnosed with Ataxia with Oculomotor Apraxia Type 2 (AOA2). Ever since, the De Mint family has worked hard to spread awareness about AOA2 and fund research to find a cure. Cindy Furton De Mint is a mother of four— three of […]