Lisa Dix has cerebellar ataxia, which in her case is caused by an immune reaction against the cerebellum. She loves to read, sew and has even learned to dance during therapy. By joining support groups, Lisa has met many wonderful people and learned a lot about ataxia. Hello, my name is Lisa Dix. I had […]
Faces Of Ataxia
Check out the Faces Of Ataxia! Every week we update this section with a story from someone with Ataxia, a caregiver, friend, or relative.
Susan Stiles was diagnosed with SCA6 at the age of 64. She had always been unexplainably clumsy, but also very athletic. Susan has always been quite a workaholic and she has even written her own book. All my life I have been clumsy but didn’t know why. I kept falling down without a moment’s notice, […]
Christie Alexander was diagnosed with Olivopontocerebellar Atrophy but learned that she actually has Spinocerebellar Ataxia Type 2 (SCA2). her story highlights the importance of getting a diagnosis by an ataxia specialist. She is now able to connect with others who know exactly what she is going through.
Ewa Błońska has spinocerebellar ataxia type 1 (SCA), which runs in her family, so she already had her diagnosis before having had any symptoms. Ewa used to be ashamed of having ataxia, but now she knows that you can still achieve and experience many other beautiful things in life. She also designs some cool clothing […]
David Cartwright has SCA6. David immigrated from England to Canada when he was 21, where he met his wife. He used to play many different types of ball sports and water sports. However, his journey with ataxia has also shown him the benefits of less intense workouts and exercising the mind.
Sonia Gobeil has two sons who have been diagnosed with ARSACS. Ever since then, Sonia has been an ARSACS advocate and she volunteers for the ARSACS Foundation. She is also actively involved in learning about improvements for people living with a disability.