Parna Mukherjee – Let’s Win This Battle
Parna Mukherjee tells her story of living in a family with SCA2 and how she copes with the disease through movement.
Faces Of Ataxia
Check out the Faces Of Ataxia! Every week we update this section with a story from someone with Ataxia, a caregiver, friend, or relative.
Terry O’Hanlon – The Devil You Know
Terry O’Hanlon had a hard time finally getting his diagnosis, even though his brother had already been diagnosed with Friedreich’s Ataxia (FA) before him.
Meredith Shafer – Find Your Blessings
Meredith Shafer and her mom are both diagnosed with Ataxia. Her biggest wish is that all people would treat each other kindly and equally.
Michelle Pinard – Riding with Peace
Michelle Pinard was an active runner ever since she was a kid and ran many marathons. In 2015, Michelle noticed some issues with her gait and body and she was diagnosed with cerebellar ataxia in 2019. Luckily, she got in touch with the Challenged Athletes Foundation, and she is now an avid cyclist!
Talia Harris – Enjoy Life
Talia Harris was diagnosed with Spinocerebellar Ataxia at age 24. This inspired her to start her own company where she now works as a Disability Consultant. Most importantly, Talia takes the time to engage in activities she really enjoys.
Sharla Hume – Overcome And Adapt
Sharla Hume has a spinal compression injury and is very involved in communities related to coordination and movement disorders. Through this post, she shares some valuable experiences and explanations about ataxia with us. I am a child at heart. On a mission with many towards a Cure for a Neurological Disease Ataxia. There are many […]
Linda Lafontaine – Together We Are Strong
Linda Lafontaine from Canada has Hereditary Spastic Paraplegia (HSP), which she has been dealing with for the past 17 years. Linda is very motivated to help others and volunteers as an ambassador at the Spastic Paraplegia Foundation to spread awareness for HSP.
Valerie Kennedy – I Love My Church!
Valerie Kennedy is a mom of four children and she is finishing her family Nurse Practitioner degree. At the age of 36, Valerie was diagnosed with a brainstem cavernous angioma. She found the strength to deal with difficult situations in her relationship with God.
Canberk Çolak – Stay Strong
Canberk Çolak is from Turkey and has been diagnosed with AOA2. Canberk was always very active as a kid and later on, he used to love playing the clarinet. His diagnosis changed his perspective on life, and he now more actively pursues the things he really wants to do. Hi there, I’m Canberk. I was […]
Gwen Walter – We Control our Attitude
Gwen Walter is a real doer: she has always been very active, doing sports like aerobic dancing, ballet, and even acrobatics. Gwen started having balance problems in her 50’s and was diagnosed with CANVAS in her 70’s.