Kara Torres-Kilgannon is the mom of the 9-year-old Sebastian who suffers from ataxia and leg spasticities of an unknown cause. Despite his daily struggles, he is a motivated young boy with many interests that dreams of being a doctor.
Did you know that we’ve got Cooking with Ataxia breakout rooms now? We’re grateful to announce that we’re working with Chef Troy Stewart to provide our Global Ataxia Support Group attendees with this valuable service. Read below for more details!
It’s already May 2021. Here are the deals available this month in the HFA store! #1 – 20% Off Everything From May 13th to 16th, you’ll be able to get 20% off on any items in the HFA store. The sale starts at 12:00 AM Eastern on the 13th and ends on the 16th at […]
We’re looking for a few good leaders! We’ve accomplished a lot in the last few months, but we still have a lot to do. If you’re driven, passionate, and have some corporate/board experience, consider joining our board. Read a bit more about our available board positions below. Who We’re Looking For We’re searching for 6 […]
Like his father, Keenan Boyd has SCA3. He shares his experience on dealing with the same diagnonsis. In memory of his father, Keenan started The Sir Ron Foundation, in memory of his father, through which he aims to support anyone who has Ataxia or knows someone with this disease.
We’re mid-way through April 2021 and we’ve got some great promos coming up in the HFA store! #1 – 15% off everything From April 14th to 18th, you’ll be able to get free shipping on any items in the HFA store. The sale starts at 12:00 AM Eastern on the 14th and ends on the […]