We’re grateful to announce that we’ve booked Sean Baumstark to speak at an upcoming Global Ataxia Support Group meeting. Read below for more details!
At the age of 25, Sean was diagnosed with Friedreich’s Ataxia and has since become an advocate for rare diseases. He refuses to let himself be defined by his challenges and decided to grab life by the horns to accomplish his goals.
With the non-profit organization de:terminence, he aims to improve the quality of life for individuals jeopardized by a disease or disorder through athleticism and physical achievement.
Sean is also an author for Friedreich’s Ataxia News, where he shares personal and inspirational stories about living with Friedreich’s Ataxia.
This is sure to be another great speaker session!
After we talk to Sean Baumstark, we’ll continue on with our regular support meeting.
Here are the details of the meeting in case you’d like to join us.