About Mark Desa
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This week, Darcy Downing shares her story of her EA2 diagnosis and how she’s coping with it. My name is Darcy Marie. I have a diagnosis of Episodic Ataxia type2. It took me 9 years to receive a diagnosis and yet my diagnosis hasn’t been proven. I still have all the symptoms of what seems […]
Maggie d’Entremont shares her story of having a rare disorder – even among Ataxians – called ARCA1. I’ve been diagnosed with Ataxia for @ 2-1/2 years. I’m currently fighting against the effects of Ataxia. As far back as I can remember, I had always been battling with clumsiness. Although growing up in Toronto, Canada, I […]
Today we get to hear from Patti Okai who has a harrowing story of how she acquired Ataxia via a brain tumour. Hi. I’m Patti Okai. On Valentine’s Day of 2018, I was diagnosed with medulloblastoma. I had gone to my primary doctor about my symptoms. I was getting sick every morning, I was pretty […]
Will Smith shares a love story that happens to include two people who embraced their differences as willingly as their similarities. Read more about how together they are making adjustments to continue building their lives together.
We thought we’d share a list of the expenses we incur. We felt it important to be transparent. We want to make it clear where money is going when someone buys an item from our store or donates. The Breakdown Currently, we use the following tools: Zoho Projects for project management Bluehost for website hosting […]